In aug 2011 right
before her 4th birthday baylee was diagnosed with a very rare disorder called
ISOLATED NK CELL DEFICIENCY.there is very few cases in the world...she also has
Ehlers-Danlos syndrome.
Baylee Wheeler 2022
east 619 Jamestown ky 42629 ..SHE LOVES MAIL:)THIS ADDRESS HAS BEEN SET UP FOR
JUST BAYLEES MAIL. Patients with NK cell deficiency are born with low or
nonexistent levels of NK cells. As a result, these patients are vulnerable to
infections. Life expectancy varies among patients, depending on how severe the
deficiency. The condition may lead to fatal infections and recent studies have
suggested patients may have an increased of developing cancer.
The exact incidence of NK cell deficiency remains unknown.Currently, there is no specific treatment for NK cell deficiency. Instead, treatment focuses on curing infections associated with the disorder. .....Natural killer (NK) cell deficiency is an inherited immune system disorder in which the patient has low or absent levels of a certain type of white blood cells called NK cells. The NK cells help the immune system fight against disease and infection. These cells recognize and destroy body cells that have become infected with viruses or cancer
...Joint hypermobility is the major manifestation of this form of Ehlers-Danlos syndrome. Any joint can be affected, and dislocations are frequent. This type is also inherited as an autosomal dominant genetic trait..........................sept 26 2007 i give birth to baylee she was 8lbs 12 1/2oz..she did very well just a little trouble breathing at first..baylee cried alot! she could not sleep laying down.she had to sleep sitting up in a swing. she would throw up almost her whole bottle at every feeding.at 3 weeks i think. she started getting really sick.high fevers.we was put in the hospital.we found out she had a very bad bladder infection.the docs said that was very rare for a baby at this age to have this..as time went on the 1st year was a bad one .lots of hospital stays high fevers,viruses flu u name it she prob had it..we started going to see many docs just tiring to find out what was going on.but no one could tells us anything.when she was just old enough to show us that things hurt she would always cry with her legs hurting.back to the docs only to tell us it was growing pains.which i know down deep it wasn't..we had mri, cat scans ,bone scans. was told it was prob a bone tumour,leukemia and so on,but after test after test still nothing..still having leg pain staying very sick all the time now she has stated getting big sore all in her mouth keeping them for weeks then they would go away and come right back after a week or so.she couldn't eat or sleep with these.then we was sent to Vanderbilt in Tenn after 3 years we got our bad news is not good she said..nk cell deficiency i was like what is that? they was like well its not good.we don't know alot about it but wht we do know kids tht we have saw doesn't live long.so we transferred to Cincinnati children's hospital were we meet dr blessings..he done test after test after test.we still are doing test trying to find out more. he said he has not saw but a few people with wht she has. i will write more of the story as days go on ,so keep checking back...............heres her address that we have had set up for just her mail if you would like to send her a card..she loves getting mail Baylee Wheeler 2022 east 619 Jamestown ky 42629
The exact incidence of NK cell deficiency remains unknown.Currently, there is no specific treatment for NK cell deficiency. Instead, treatment focuses on curing infections associated with the disorder. .....Natural killer (NK) cell deficiency is an inherited immune system disorder in which the patient has low or absent levels of a certain type of white blood cells called NK cells. The NK cells help the immune system fight against disease and infection. These cells recognize and destroy body cells that have become infected with viruses or cancer
...Joint hypermobility is the major manifestation of this form of Ehlers-Danlos syndrome. Any joint can be affected, and dislocations are frequent. This type is also inherited as an autosomal dominant genetic trait..........................sept 26 2007 i give birth to baylee she was 8lbs 12 1/2oz..she did very well just a little trouble breathing at first..baylee cried alot! she could not sleep laying down.she had to sleep sitting up in a swing. she would throw up almost her whole bottle at every feeding.at 3 weeks i think. she started getting really sick.high fevers.we was put in the hospital.we found out she had a very bad bladder infection.the docs said that was very rare for a baby at this age to have this..as time went on the 1st year was a bad one .lots of hospital stays high fevers,viruses flu u name it she prob had it..we started going to see many docs just tiring to find out what was going on.but no one could tells us anything.when she was just old enough to show us that things hurt she would always cry with her legs hurting.back to the docs only to tell us it was growing pains.which i know down deep it wasn't..we had mri, cat scans ,bone scans. was told it was prob a bone tumour,leukemia and so on,but after test after test still nothing..still having leg pain staying very sick all the time now she has stated getting big sore all in her mouth keeping them for weeks then they would go away and come right back after a week or so.she couldn't eat or sleep with these.then we was sent to Vanderbilt in Tenn after 3 years we got our bad news is not good she said..nk cell deficiency i was like what is that? they was like well its not good.we don't know alot about it but wht we do know kids tht we have saw doesn't live long.so we transferred to Cincinnati children's hospital were we meet dr blessings..he done test after test after test.we still are doing test trying to find out more. he said he has not saw but a few people with wht she has. i will write more of the story as days go on ,so keep checking back...............heres her address that we have had set up for just her mail if you would like to send her a card..she loves getting mail Baylee Wheeler 2022 east 619 Jamestown ky 42629
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