Wednesday, 30 January 2013
Sunday, 27 January 2013
Friday, 18 January 2013
This is BAYLEE
In aug 2011 right
before her 4th birthday baylee was diagnosed with a very rare disorder called
ISOLATED NK CELL DEFICIENCY.there is very few cases in the world...she also has
Ehlers-Danlos syndrome.
Baylee Wheeler 2022
east 619 Jamestown ky 42629 ..SHE LOVES MAIL:)THIS ADDRESS HAS BEEN SET UP FOR
JUST BAYLEES MAIL. Patients with NK cell deficiency are born with low or
nonexistent levels of NK cells. As a result, these patients are vulnerable to
infections. Life expectancy varies among patients, depending on how severe the
deficiency. The condition may lead to fatal infections and recent studies have
suggested patients may have an increased of developing cancer.
The exact incidence of NK cell deficiency remains unknown.Currently, there is no specific treatment for NK cell deficiency. Instead, treatment focuses on curing infections associated with the disorder. .....Natural killer (NK) cell deficiency is an inherited immune system disorder in which the patient has low or absent levels of a certain type of white blood cells called NK cells. The NK cells help the immune system fight against disease and infection. These cells recognize and destroy body cells that have become infected with viruses or cancer
...Joint hypermobility is the major manifestation of this form of Ehlers-Danlos syndrome. Any joint can be affected, and dislocations are frequent. This type is also inherited as an autosomal dominant genetic trait..........................sept 26 2007 i give birth to baylee she was 8lbs 12 1/2oz..she did very well just a little trouble breathing at first..baylee cried alot! she could not sleep laying down.she had to sleep sitting up in a swing. she would throw up almost her whole bottle at every feeding.at 3 weeks i think. she started getting really sick.high fevers.we was put in the hospital.we found out she had a very bad bladder infection.the docs said that was very rare for a baby at this age to have this..as time went on the 1st year was a bad one .lots of hospital stays high fevers,viruses flu u name it she prob had it..we started going to see many docs just tiring to find out what was going on.but no one could tells us anything.when she was just old enough to show us that things hurt she would always cry with her legs hurting.back to the docs only to tell us it was growing pains.which i know down deep it wasn't..we had mri, cat scans ,bone scans. was told it was prob a bone tumour,leukemia and so on,but after test after test still nothing..still having leg pain staying very sick all the time now she has stated getting big sore all in her mouth keeping them for weeks then they would go away and come right back after a week or so.she couldn't eat or sleep with these.then we was sent to Vanderbilt in Tenn after 3 years we got our bad news is not good she said..nk cell deficiency i was like what is that? they was like well its not good.we don't know alot about it but wht we do know kids tht we have saw doesn't live long.so we transferred to Cincinnati children's hospital were we meet dr blessings..he done test after test after test.we still are doing test trying to find out more. he said he has not saw but a few people with wht she has. i will write more of the story as days go on ,so keep checking back...............heres her address that we have had set up for just her mail if you would like to send her a card..she loves getting mail Baylee Wheeler 2022 east 619 Jamestown ky 42629
The exact incidence of NK cell deficiency remains unknown.Currently, there is no specific treatment for NK cell deficiency. Instead, treatment focuses on curing infections associated with the disorder. .....Natural killer (NK) cell deficiency is an inherited immune system disorder in which the patient has low or absent levels of a certain type of white blood cells called NK cells. The NK cells help the immune system fight against disease and infection. These cells recognize and destroy body cells that have become infected with viruses or cancer
...Joint hypermobility is the major manifestation of this form of Ehlers-Danlos syndrome. Any joint can be affected, and dislocations are frequent. This type is also inherited as an autosomal dominant genetic trait..........................sept 26 2007 i give birth to baylee she was 8lbs 12 1/2oz..she did very well just a little trouble breathing at first..baylee cried alot! she could not sleep laying down.she had to sleep sitting up in a swing. she would throw up almost her whole bottle at every feeding.at 3 weeks i think. she started getting really sick.high fevers.we was put in the hospital.we found out she had a very bad bladder infection.the docs said that was very rare for a baby at this age to have this..as time went on the 1st year was a bad one .lots of hospital stays high fevers,viruses flu u name it she prob had it..we started going to see many docs just tiring to find out what was going on.but no one could tells us anything.when she was just old enough to show us that things hurt she would always cry with her legs hurting.back to the docs only to tell us it was growing pains.which i know down deep it wasn't..we had mri, cat scans ,bone scans. was told it was prob a bone tumour,leukemia and so on,but after test after test still nothing..still having leg pain staying very sick all the time now she has stated getting big sore all in her mouth keeping them for weeks then they would go away and come right back after a week or so.she couldn't eat or sleep with these.then we was sent to Vanderbilt in Tenn after 3 years we got our bad news is not good she said..nk cell deficiency i was like what is that? they was like well its not good.we don't know alot about it but wht we do know kids tht we have saw doesn't live long.so we transferred to Cincinnati children's hospital were we meet dr blessings..he done test after test after test.we still are doing test trying to find out more. he said he has not saw but a few people with wht she has. i will write more of the story as days go on ,so keep checking back...............heres her address that we have had set up for just her mail if you would like to send her a card..she loves getting mail Baylee Wheeler 2022 east 619 Jamestown ky 42629
Thursday, 17 January 2013
I AM CANADIAN
EXCELLENT Letter!!!-------i was not born here ... I AM CANADIAN
I am more than PROUD to pass this on.
Congratulations to our fellow Canadians in Quebec who had the courage and conviction to exhibit their common sense in officially banning the hijab for certain transactions where identity is mandatory. It's a start. It's a privilege to be allowed to immigrate and to live in this country - not a right. When this hit the e-news a few weeks ago, there was overwhelming support by the readers who AGREED with Quebec 's action.
The letter below says it all. Keep it going.
A Letter to the Editor (excellent letter)
So many letter writers have explained how this land is made up of immigrants. Maybe we should turn to our history books and point out to people why today's Canadian is not willing to accept the new kind of immigrant any longer.
Back in 1900 when there was a rush from all areas of Europe to come to Canada, people had to get off a ship and stand in a long line in Halifax and be documented. Some would even get down on their hands and knees and kiss the ground. They made a pledge to uphold the laws and support their new country in good and bad times. They made learning English a primary rule in their new Canadian households and some even changed their names to blend in with their new home. They had waved good bye to their birth place to give their children a new and better life and did everything in their power to help their children assimilate into one culture.
Nothing was handed to them. No free lunches, no welfare, no labour laws to protect them. All they had were the skills, craftsmanship and desire they had brought with them to trade for a future of prosperity.
Most of their children came of age when World War II broke out. Canadians fought along side men whose parents had come straight over from Germany, Italy, France, Japan, China, Czechoslovakia, Russia, Sweden, Poland and so many other places. None of these first generation Canadians ever gave any thought about what country their parents had come from. They were Canadians fighting Hitler, Mussolini and the Emperor of Japan. They were defending the Freedom as one people. When we liberated France, no one in those villages was looking for the Ukrainian-Canadian or the German-Canadian or the Irish-Canadian. The people of France saw only Canadians.
And we carried one flag that represented our country. Not one of those immigrant sons would have thought about picking up another country's flag and waving it to represent who they were. It would have been a disgrace to their parents who had sacrificed so much to be here. These immigrants truly knew what it meant to be a Canadian. They stirred the melting pot into one red and white bowl.
And here we are in 2012 with a new kind of immigrant who wants the same rights and privileges, only they want to achieve it by playing with a different set of rules - one that includes a Canadian passport and a guarantee of being faithful to their mother country. I'm sorry, that's not what being a Canadian is all about. Canadians have been very open-hearted and open-minded regarding immigrants, whether they were fleeing poverty, dictatorship, persecution, or what ever else makes us think of those aforementioned immigrants who truly did ADOPT our country, our flag, our morals and our customs, and left their wars, hatred, and divisions behind. I believe that the immigrants who landed in Canada in the early 1900s deserve better than that for the toil, hard work and sacrifice of those legally searching for a better life. I think they would be appalled that they are being used as an example by those waving foreign country flags, fighting foreign battles on our soil, making Canadians change to suit their religions and cultures, and wanting to change our country’s fabric by claiming discrimination when we do not give in to their demands.
Its about time we get real and stand up for our forefathers rights. We are CANADIAN. I am a Native of this Country and proud of it!
NO MORE POLITICAL CORRECTNESS
And while we're on the subject - allow CHRISTMAS back in stores and our schools! I want back the country of my birth.
Wednesday, 16 January 2013
Bagpiper at a Funeral
I found this anonymous article deeply moving--- I hope you do, too.
Bagpiper at a Funeral
As a bagpiper, I play many gigs. Recently I was asked by a
funeral director to play at a graveside service for a homeless
man. He had no family or friends, so the service was to be at a
pauper's cemetery in the back country. As I was not familiar
with the backwoods, I got lost and, being a typical man,
I didn't stop for directions.
I finally arrived an hour late and saw the funeral guy had evidently
gone and the hearse was nowhere in sight. There were only the
diggers and crew left and they were eating lunch.
I felt badly and apologized to the men for being late. I went to the
side of the grave and looked down and the vault lid was already in place
I didn't know what else to do, so I started to play.
The workers put down their lunches and began to gather around.
I played out my heart and soul for this man with no family and friends.
I Played like I've never played before for this homeless man.
And as I played 'Amazing Grace,' the workers began to weep. They wept,
I wept, we all wept together. When I finished I packed up my bagpipes
and started for my car.
Though my head hung low, my heart was full.
As I opened the door to my car, I heard one of the workers say,
"I never seen nothin' like that before and I've been putting in
septic tanks for twenty years."
Apparently, I'm still lost... It's a man thing.
Monday, 14 January 2013
Mansanto = Evil
there are links, when you click on the link below, where you can find the customer hotline numbers for all of these companies. You can also sign their petition - I beleive this is worth a few phone calls and not just a click.....
Boycott the Brands that Blocked Your Right to Know!
Take action here: http://salsa3.salsalabs.com/o/ 50865/p/dia/action3/common/ public/?action_KEY=8959
Take action here: http://salsa3.salsalabs.com/o/
Sunday, 13 January 2013
NaturalNews.com
The world just lost a brilliant internet revolutionary: Aaron Swartz was found dead yesterday. He's the guy who masterminded the defeat of SOPA and PIPA. The official explanation is that he killed himself, but Swartz himself would have wanted us to ask questions about things that don't add up. Read more: http://
Friday, 11 January 2013
From Morning Blessing
There
came a time in the universe for many beings to come in to Earth, and so
a great line formed on the other side of the veil. Many people got
ready to come in and said, "It looks like it is going to happen. We are
all going in here." And all the people who thought they could make a
difference got in line, ready to take a turn in a body.
Then
a magical thing happened. Someone at the front of the line turned
around and looked at the person behind him and said, "You know, you have
a better chance of making a difference than I do. I am going to step
aside and ask you to move to the front of the line." And that soul moved
aside so that this one could go forward, and one by one, each being
stepped aside so that the souls with the finest possibilities of
creating heaven on Earth could move to the forefront.
And
here you are! You made it in! And it's my job to remind you that you
are the ones. You are the magical beings from home who everybody stepped
aside for so that you could come in. You have a responsibility to all
of those who stepped aside, and you are doing so well!
It's kind of like being a Universal Oscar winner!
Tuesday, 8 January 2013
Priceless
Shirley & Marcy
A mother was concerned about her kindergarten son walking to school. He didn't want his mother to walk with him. She wanted to give him the feeling that he had some independence but yet know that he was safe.
So she had an idea of how to handle it. She asked a neighbor if she would please follow him to school in the mornings, staying at a distance, so he probably wouldn't notice her. She said that since she was up early with her toddler anyway, it would be a good way for them to get some exercise as well, so she agreed.
The next school day, the neighbor and her little girl set out following behind Timmy as he walked to school with another neighbor girl he knew. She did this for the whole week.
As the two kids walked and chatted, kicking stones and twigs, Timmy 's little friend noticed the same lady was following them as she seemed to do every day all week. Finally she said to Timmy, 'Have you noticed that lady following us to school all week? Do you know her?'
Timmy nonchalantly replied, 'Yeah, I know who she is.'
The little girl said, 'Well, who is she?'
'That's just Shirley Goodnest, 'Timmy replied, 'and her daughter Marcy.'
'Shirley Goodnest? Who is she and why is she following us?
'Well,' Timmy explained, 'every night my Mum makes me say the 23rd Psalm with my prayers, 'cuz she worries about me so much. And in the Psalm, it says, ' Shirley Goodnest and Marcy shall follow me all the days of my life', so I guess I'll just have to get used to it!'
A mother was concerned about her kindergarten son walking to school. He didn't want his mother to walk with him. She wanted to give him the feeling that he had some independence but yet know that he was safe.
So she had an idea of how to handle it. She asked a neighbor if she would please follow him to school in the mornings, staying at a distance, so he probably wouldn't notice her. She said that since she was up early with her toddler anyway, it would be a good way for them to get some exercise as well, so she agreed.
The next school day, the neighbor and her little girl set out following behind Timmy as he walked to school with another neighbor girl he knew. She did this for the whole week.
As the two kids walked and chatted, kicking stones and twigs, Timmy 's little friend noticed the same lady was following them as she seemed to do every day all week. Finally she said to Timmy, 'Have you noticed that lady following us to school all week? Do you know her?'
Timmy nonchalantly replied, 'Yeah, I know who she is.'
The little girl said, 'Well, who is she?'
'That's just Shirley Goodnest, 'Timmy replied, 'and her daughter Marcy.'
'Shirley Goodnest? Who is she and why is she following us?
'Well,' Timmy explained, 'every night my Mum makes me say the 23rd Psalm with my prayers, 'cuz she worries about me so much. And in the Psalm, it says, ' Shirley Goodnest and Marcy shall follow me all the days of my life', so I guess I'll just have to get used to it!'
Sunday, 6 January 2013
Belated HAPPY NEW YEAR
Well, I'm back. Had a great Christmas with my family, and then landed in the hospital. It appears I have a family condition known as Congestive Heart Failure. My father lived for twenty-seven years after he was diagnosed and my brother lived for six months after he found out. Guess it is something like a crap-shoot.
I'll do my best to follow the rules, however I have to say, my personal opinion concerning rules is...SC--- THEM. I suppose that statement alone tells a lot about me and the era I grew up in. Anyway, my recent journey has put yet another perspective on life and death.
Thanks for reading... Have a Fabulous Day, Anya
I'll do my best to follow the rules, however I have to say, my personal opinion concerning rules is...SC--- THEM. I suppose that statement alone tells a lot about me and the era I grew up in. Anyway, my recent journey has put yet another perspective on life and death.
Thanks for reading... Have a Fabulous Day, Anya
Still Not Asking For It!
This photo was posted on STFU, Conservatives Tumblr page last night. The reason why I'm sharing it is not because of the photo itself (which is epic in it's own right), but for the comments it generated.
One person wrote, "but then again, its kind like putting a meat suit on and telling a shark not to eat you".
STFU responded (with bolded text):
"We (men) are not fucking sharks!
We are not rabid animals living off of pure instinct
We are capable of rational thinking and understanding.
Just because someone is cooking food doesn’t mean you’re entitled to eat it.
Just because a banker is counting money doesn’t mean you’re being given free money.
Just because a person is naked doesn’t mean you’re entitled to fuck them.
You are not entitled to someone else’s body just because it’s exposed.
What is so fucking difficult about this concept?"
Bravo.
One person wrote, "but then again, its kind like putting a meat suit on and telling a shark not to eat you".
STFU responded (with bolded text):
"We (men) are not fucking sharks!
We are not rabid animals living off of pure instinct
We are capable of rational thinking and understanding.
Just because someone is cooking food doesn’t mean you’re entitled to eat it.
Just because a banker is counting money doesn’t mean you’re being given free money.
Just because a person is naked doesn’t mean you’re entitled to fuck them.
You are not entitled to someone else’s body just because it’s exposed.
What is so fucking difficult about this concept?"
Bravo.
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